There is no doubt these are pretty scary times. Having watched what a respiratory virus did to Alfie before Christmas, we are all feeling pretty on edge about the current situation with Coronavirus. However as a family, we are also some of the lucky ones. We have a community of friends and family all on hand to help and even through times of isolation we can access everything we need. What I worry about are those elderly people within our communities. It’s easy to assume they have families looking after them, but far too many don’t, or their families are having to isolate themselves.
If you do one thing, please reach out to someone you suspect could be struggling or alone. Not in a few weeks, but now, when they will be dealing with the fear of all that is to come. It’s as simple as dropping a note through the door with a phone number or contacting your local council and downloading the community pack and registering yourself to be available to run small errands or check in on people.
I know from experience that in dark times, feeling like people care is the biggest comfort.
Small actions go a long way and when we stand on the other side of this pandemic, let’s stand proud knowing we did everything we could 💫
I find it hard to believe I’m even writing these words... but, we are HOME!
We were expecting several weeks more in hospital but Alfie has quite literally broken records for discharge time. Bristol children’s hospital very sensibly suggested he was better off doing the rest of his recovery from the comfort of home rather than a high dependency ward full of dangerous contagious diseases.
Without sounding like a negative Nelly, truthfully being home is perhaps less blissful than it initially sounds. The realities of balancing the boys needs plus new complications is tough and although Alfie is still on more pain killers than you can shake a stick at, they don’t always do the trick and he’s unable to settle for more than 20 minutes at night without repositioning. However, we are on to the next leg of recovery much sooner than expected and for that we are all truly grateful.
This boy is quite literally as hard as nails (swipe left for x ray 😱) and has defied the odds from day dot. This was the operation I was told he was not likely to need as he would probably pass away in early childhood. There isn’t a single day that I take for granted that he is here, more inspiring and cheeky by the day.
I also have no doubt that the amount of positivity and love thrown his/our way will have helped him make such a remarkable recovery so far.
Alfie as always has an enormous amount to say on the matter so will do a vlog soon about his point of view. But one thing we all agree on, is that from the cleaners to the consultants, every single person who works in the NHS is a real life hero. It’s the backbone of our country and I don’t know where we would be without it 🙏🏻🙏🏻
